Despite all the proven progress of contemporary medicine, some people are drawn to alternative or “natural” remedies and practices. Many of these do no harm. As one cancer specialist observed recently, people undergoing cancer treatment will frequently try meditation or vitamins as well. When such a change is in addition to, and not in place of, evidence-based treatment, this is usually not a concern. If it lessens distress, it can help.
But the proliferation of online health influencers presents problems that governments and oversight bodies in many countries have not fully understood. An investigation into one such business offering membership and advice to pregnant mothers has revealed numerous cases of third-trimester stillbirths or other severe injury connected to mothers or birth attendants associated with it. While the entity is headquartered in North Carolina, its reach is global.
“Across whole populations, going through labour and birth without professional support is associated with higher levels of risk for mother and baby,” according to a expert of midwifery.
Giving birth without medical assistance, sometimes called free birth, is permitted in countries including the UK and US. The risks are poorly documented due to a lack of data. Childbirth can be a frightening prospect, and excellent care is far from guaranteed. In England, a shocking recent report found two-thirds of hospital maternity services to be unsafe or in need of improvement.
Criticisms of medical systems and particular, persistent issues with maternity care are in many cases justified. Many of the women interviewed for the inquiry had previously experienced traumatic births.
But while mistrust of institutions may be rooted in experience, it has also become a fertile ground for other influencers seeking converts to their unorthodox methods and DIY philosophy. During the pandemic, a “well-being” industry ostensibly focused on healthy living was involved in disseminating falsehoods about vaccines and fuelling suspicion about official advice.
Worry is rising that such ideas are acquiring more general purchase. One presentation given at a cancer conference focused on misinformation, which it said had “significantly deteriorated in the past decade”. This investigation shows that behind the facade of an rebellious community lies an operation that trains women as social media influencers as in addition to birth attendants. The organization does not present itself to be a qualified medical provider.
There is no turning the clock back to a time when doctors were presumed to know best. Vast quantities of scientific research are made available online and many people use these to beneficial effect. But there is also a need for protections from poor advice. It is well known that the algorithms used by tech companies reward increasingly sensational content.
In the UK, improvements to maternity services are urgently needed. They should include the option of home birth and the provision of clear information to support women in making decisions. Policymakers and bodies including the World Health Organization should also create strategies for the online information landscape so that evidence-based healthcare is not compromised.
A tech enthusiast and business strategist with over a decade of experience in digital transformation and startup consulting.